Beautiful Jayden and Brooklyn were born with a rare genetic disorder called Sanfilippo Syndrome. It is so rare that there has been no cure or treatment. They were given this diagnosis 5 years ago and it significantly shortens their lives. It is in this place I have sought after the grace of God. Constantly looking for beautiful hues of grace or occasionally clinging to the shadows of gray.
God has allowed me to witness His grace through visuals of brilliant hues of color. Sometimes, it's in my granddaughter Brooklyn's eyes that sparkle like water dancing on the ocean shore, it's there I see grace. I see the color of grace when I watch her playing pretend, when she sings twinkle twinkle little star. Then when she wants to sing it again and again. When she's not feeling her best Gods grace shines even brighter! Gods love deepens me and we share the grace place. She reminds me to look deeper and allows my faith to be stretched. It's in that moment I'm overwhelmed by His sufficiency.
I see His grace breaking through the surface of my heart when I share moments with Jayden. He offers me an adoring smile and then takes my soul to that grace place where his laughter consumes the space we share. Grace is God's to give and for us to receive. Jayden is my gentle reminder that God has so much more grace to give then we can ever imagine.
It's often though, I see grace in the shadows and shades of gray. Our lives are often spent in the shadows of his grace. The shade or shadow has been my hiding place, a place of shelter. Sometimes it portrayed as dark and gray, but maybe it's in the shadows where he often calls us to be, to land. The grace place, where we find protection from the heavy storms. It's in the shadow of the almighty where we experience peace and where we find rest. It's the wonder of this place that renders me speechless .
I'm blessed and even overwhelmed when I abide in the grace of God whether its in the shadow or hues of color. I see the hand of a majestic God reaching down directing our steps allowing us to see His grace in new ways. Thank you Jesus for showing me. Thank you Brooklyn and Jayden for being a reminder of the color of grace in our lives.
As I write this, we are learning of new advances in finding a cure for this disease. We praise God that He continues to show Himself in the lives of these children. Please pray as we seek Him in funding a new advancement in Gene therapy. A cure for this disease.
I'm blessed and even overwhelmed when I abide in the grace of God whether its in the shadow or hues of color. I see the hand of a majestic God reaching down directing our steps allowing us to see His grace in new ways. Thank you Jesus for showing me. Thank you Brooklyn and Jayden for being a reminder of the color of grace in our lives.
As I write this, we are learning of new advances in finding a cure for this disease. We praise God that He continues to show Himself in the lives of these children. Please pray as we seek Him in funding a new advancement in Gene therapy. A cure for this disease.
Psalm 91:1
Whoever dwells in the shelter of the Most High will rest in the shadow of the Almighty.
Whoever dwells in the shelter of the Most High will rest in the shadow of the Almighty.
2 Timothy 1:9
He has saved us and called us to a holy life—not because of anything we have done but because of his own purpose and grace. This grace was given us in Christ Jesus before the beginning of time
James 4:6
But he gives us more grace. That is why Scripture says: “God opposes the proud but shows favor to the humble.
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